Collection: Information and resources

You can purchase information and resources about MPS, Fabry and related diseases below. 

New for 2021 - Ethan & Me is one family’s story of courage through adversity as they raise a child with special needs. It’s a story that supports other families with a newly diagnosed special needs child or those who are already on that journey by imparting words of wisdom and understanding. There are many laugh out loud moments in the midst of the daily challenges, and more than all of this, there is a message of hope.

Pre-order Ethan & Me today

13 products
  • Managing Challenging Behaviour
    Managing Challenging Behaviour
    Regular price
    £2.00
    Sale price
    £2.00
  • Our brothers and sisters have Sanfilippo
    Our brothers and sisters have Sanfilippo
    Regular price
    £2.00
    Sale price
    £2.00
  • I've got Hunter's
    I've got Hunter's
    Regular price
    £2.00
    Sale price
    £2.00
  • I've got Fabry's
    I've got Fabry's
    Regular price
    £2.00
    Sale price
    £2.00
  • I've got Hurler's
    I've got Hurler's
    Regular price
    £2.00
    Sale price
    £2.00
  • I've got Morquio's
    I've got Morquio's
    Regular price
    £2.00
    Sale price
    £2.00
  • Resuscitation Guidelines for MPS Patients in Relation to: Choking, Falling, Basic Life Support
    Resuscitation Guidelines for MPS Patients in Relation to: Choking, Falling, Basic Life Support
    Regular price
    Sold out
    Sale price
    £2.00
  • Ben's ERT Story
    Ben's ERT Story
    Regular price
    £2.00
    Sale price
    £2.00